Dr. Cole said that he agreed with Dr. Shah that we did not
need to do treatment at this point. He
said that as I don’t have the bad symptoms that I mentioned in my last post, we
shouldn’t do treatments. I shared with
him how that seemed almost like waiting until I had 3rd degree
sunburn to put on sun block. He laughed
and said that they would be monitoring me closely by doing blood work every 6-8
weeks and he assured me that we wouldn’t let it get that bad. He said that treatments would actually be like
putting on sun block before going outside, but that the sun block had acid in
it. They are that debilitating. He did not want to put me through that unless
it was absolutely necessary. I can fully
appreciate that!
We then talked about how I keep getting sick & how it is
causing me problems at work. He has
scheduled me for an intravenous Immunoglobulin G (IgG) infusion a week from
today. It will take 6 hours to do. I’m planning on taking stitching & my
Kindle to entertain myself. Hopefully I
get lots of good stitching in. If it’s
not possible because of the IV, I’ll for sure get lots of good reading in. I’m OK with either. We will then do another IgG infusion 4 weeks
after the 1st one. Dr. Cole will order blood work to see how I am
doing and if we need to do more. I am
praying that the infusions do what Dr. Cole thinks they will & that I’ll
feel better soon. I’m sick & tired
of feeling sick & tired.
So, we are in a hurry up & wait mode to see how I am
doing before any treatments are done. Hmmmm…..
I’ve never been the most patient person there ever was. Think God is trying to teach me
something? I’m thinking the answer is yes
and I better pay attention & see what that is…patience?...faith?...something
else? Guess I’d better buckle up &
hang on for the ride. Knowing that God
is behind the wheel makes that a WHOLE lot easier.
8 comments:
Hi Jana
God is definately sending you the people you need. As it happens, I just to give IVIG many years ago. It's mainly boring for you.It doesn't have any side effects. One question: How are your veins? If you have pretty good veins it won't be a problem. If your veins are less than stellar, you may want to ask your doctor about getting an implanted port. He'll know what you are talking about. Hope everything keeps going well for you.
Jana, it sounds like you have good Docs caring for you. Hopefully the treatments he's giving you will bring back some strength. Take care! Theresa
The hurry up and wait would be hard but it is such a blessing to have caught it so early and have such good Drs! I will continue to pray for you! Take Care- Jessica G
glad to hear you are in good hands, a doctor that believes in a less harsh, thing before putting in the " acid " as you said in your blog
Thinking of, and praying for you. Those lessons of faith and patience are often the hardest to learn, but I think they also come with some of the greatest rewards.
It's always hard to wait, isn't it, even when we know God is in control. Sounds like you've got a great team of doctors. Praying for you. :)
I still believe our God can completely heal! I'm praying that He chooses to heal you and take this from you before you get to the point of needing the "acid sunblock" treatments. Love you!
I hope the infusions work, Jana, and that you stop feeling sick and tired. You're on my prayer list, and I hope that's helping you. I'm glad you don't think you're in the driver's seat. Usually, when I start thinking that, He does something to remind me of who's in charge, lol.
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