Friday, May 4, 2012

Hurry up and wait...

I was blessed to see Dr. Cole, my doctor here in Tulsa, today.  He is a wonderful doctor & I am beyond thankful that God has placed him in my life.   I knew he would be able to “dumb down” my results from Houston & he did not disappoint.  I feel like I have a much better handle on the situation now. 

Dr. Cole said that he agreed with Dr. Shah that we did not need to do treatment at this point.  He said that as I don’t have the bad symptoms that I mentioned in my last post, we shouldn’t do treatments.  I shared with him how that seemed almost like waiting until I had 3rd degree sunburn to put on sun block.  He laughed and said that they would be monitoring me closely by doing blood work every 6-8 weeks and he assured me that we wouldn’t let it get that bad.  He said that treatments would actually be like putting on sun block before going outside, but that the sun block had acid in it.  They are that debilitating.  He did not want to put me through that unless it was absolutely necessary.  I can fully appreciate that! 

We then talked about how I keep getting sick & how it is causing me problems at work.  He has scheduled me for an intravenous Immunoglobulin G (IgG) infusion a week from today.  It will take 6 hours to do.  I’m planning on taking stitching & my Kindle to entertain myself.  Hopefully I get lots of good stitching in.  If it’s not possible because of the IV, I’ll for sure get lots of good reading in.  I’m OK with either.  We will then do another IgG infusion 4 weeks after the 1st one. Dr. Cole will order blood work to see how I am doing and if we need to do more.  I am praying that the infusions do what Dr. Cole thinks they will & that I’ll feel better soon.  I’m sick & tired of feeling sick & tired. 

So, we are in a hurry up & wait mode to see how I am doing before any treatments are done.  Hmmmm….. I’ve never been the most patient person there ever was.  Think God is trying to teach me something?  I’m thinking the answer is yes and I better pay attention & see what that is…patience?...faith?...something else?  Guess I’d better buckle up & hang on for the ride.  Knowing that God is behind the wheel makes that a WHOLE lot easier.

8 comments:

junebug561 said...

Hi Jana

God is definately sending you the people you need. As it happens, I just to give IVIG many years ago. It's mainly boring for you.It doesn't have any side effects. One question: How are your veins? If you have pretty good veins it won't be a problem. If your veins are less than stellar, you may want to ask your doctor about getting an implanted port. He'll know what you are talking about. Hope everything keeps going well for you.

OctoberLace said...

Jana, it sounds like you have good Docs caring for you. Hopefully the treatments he's giving you will bring back some strength. Take care! Theresa

Anonymous said...

The hurry up and wait would be hard but it is such a blessing to have caught it so early and have such good Drs! I will continue to pray for you! Take Care- Jessica G

JoAnn McLaughlin said...

glad to hear you are in good hands, a doctor that believes in a less harsh, thing before putting in the " acid " as you said in your blog

Karen said...

Thinking of, and praying for you. Those lessons of faith and patience are often the hardest to learn, but I think they also come with some of the greatest rewards.

Carolyn NC said...

It's always hard to wait, isn't it, even when we know God is in control. Sounds like you've got a great team of doctors. Praying for you. :)

Jamie Myers said...

I still believe our God can completely heal! I'm praying that He chooses to heal you and take this from you before you get to the point of needing the "acid sunblock" treatments. Love you!

mdgtjulie said...

I hope the infusions work, Jana, and that you stop feeling sick and tired. You're on my prayer list, and I hope that's helping you. I'm glad you don't think you're in the driver's seat. Usually, when I start thinking that, He does something to remind me of who's in charge, lol.